Real life stuff

I’ve been thinking recently about how ALS is a lot more than just a physical change.  ALS takes over your life.  Many people offer help.  But I sometimes wonder, how much is too much to ask?  My needs are all encompassing.  Do people realize that?  Is their offer of help just touching the surface or do they want to get down to the nitty gritty?  I am typing this blog on my own, but what about when I need to get dressed?, scratch my nose?, use the toilet?  or floss my teeth?  Believe it or not, some people have chosen the toileting over flossing.  I honestly don’t know what I myself would consider off limits.  There are no secrets with ALS.  If you don’t have a REAL life partner ALS sucks even more, if you can believe that.

 

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